Alberta family faces ‘uncertain future’ after toddler’s rare disease care funding denied
The Alberta family of a toddler with a rare condition is fighting with the province’s health-care system over its refusal...
rare
Toddler survives rare brain tumour through cutting-edge proton therapy
When two-year-old Yanna Lui first babbled the word "mama" in August, her mother was overwhelmed with emotion."It was like witnessing...
WHA Approves Landmark Resolutions On Health Finance, Rare Diseases And Skin Diseases
Saturday’s WHA session saw the approval of multiple resolutions, including new measures on health finance, rare disease and skin diseases....
Treatments for rare skin diseases receive high-level approvals
Skin diseases do not only impact physical appearance but also leave a lasting psychological impact on patients. However, many diseases,...
Savara Begins Rolling BLA for Molbreevi for Rare Lung Disease
alveoli © Kenny Parker - stock.adobe.comPharmaceutical company Savara has initiated a rolling biologics license application (BLA) with the FDA for...
NUHCS to start using breakthrough drug for rare lung condition
Winrevair, which treats hypertension from constricted lung arteries, costs $3,700-$6,730The National University Heart Centre, Singapore (NUHCS) will start using sotatercept (Winrevair)...
Rare diseases: A global healthcare challenge
Global challenge Rare diseases are considered a global challenge because they affect around 400 million people worldwide. Asia-Pacific region has...
Dialysis Unexpectedly Spurred Skin Repigmentation in Patient with Rare Form of Vitiligo
A 25-year-old woman with vitiligo universalis, a severe form of vitiligo that causes nearly complete loss of skin color across...
Royston toddler learning to walk with prosthetic foot after rare pregnancy complication
ROYSTON, Ga. - At 16 months, Bentley is one of the youngest amputees in physical therapy at Children's Healthcare of...
